BuuBuu's Story:
I would like to thank my husband for with out his wisdom Love and support I would not be alive today. My family here for their knowledge hope and loving support and to anyone who reads my story, to let you know there is always hope. I was diagnosed with hep-c in 1993. I didn't admit it to anyone even to myself, I had no outwardd signs and felt great, and it was my "secret". In 1995 at age 45 I met my husband and life mate, we went back to his house to talk hummm, I noticed on his coffee table a book, and on the cover it said hep-c, I asked him if he had hep and he said yes. He was the first one I ever admitted it to. Shortly afterward we were married, shortly after our marriage I started feeling bad so my husband took me to his doctor after a battery of tests found out I had cirrhosis of the liver. My husband had done interferon and it helped him, he is still undetected to this day. I did the treatment for a year no sides, but the liver was in end stage by this time and I had been in and out of hospital many times, my Dr. referred me to UCLA, where I meet the Dr. that would save my life. He told me the liver was so far gone, that the only thing
at this point that we could do was get me a new liver. Well, you face a lot of demons when you know you are dying, so I made my peace with GOD and left it in his hands. I was in hospital several times once put on to waiting list, and didn't think I would make it very long. I started a real downhill slide because I really didn't think I would get a liver. I was no one special why should they give me a liver and not someone else, that was how I felt. Then my husband said something to me that blew me away, it was very simple. He said, "Adrienne", "God didn't bring you this far to drop you on your fanny now!" And it was really the truth. It was 10:00pm when we got the call, my husband and I looked like a keystone cop comedy skit, we were running around and around in circles and bumping in to each other so excited we finally got the call. I only had to wait 6 months and was shocked when the call finally came. The only thing I seemed to be afraid of was the fact I didn't want to die on the table
without being able to say good-bye to my husband, family and friends. But again that
simple little thing my husband had said to me stuck, so bravely ahead I went.
Operation a success!!!!. I was making my own bed at hospital after 4 days! Yes, my life is much slower these days, but it is soooooo gooood to be alive, MY HEP-C is back, but I live one day at time and that is all we can do. So please have the HOPE FAITH and COURAGE to go on, there is always HOPE!!! GOD BLESS ALL OF YOU. If I can help in anyway let me know.
Love,
BuuBuu
This is an update:
As I had mentioned earlier my hep came back with a vegence,I had my first major rejection in april of 2002,
after doing 1 year of peg -riba,and being undetected,I really don't know and the doctors haven't a clue if this may have caused the rejection,it just seems kind of stange to be so many year post ...do treatment then go into major rejection.
while I was in the hospital for the rejection,the transplant surgeon came in to say hello and to tell me the news that I needed another transplant.
Well I guess it really didn't sink in at first.
Then a few hours later it hit me
YOU MEAN I HAVE TO GO DO THIS ALL OVER AGAIN!!!
so I had all my evaulation tests again while I was in,they got the rejection controlled so now I'm just in chronic rejection since that time.
I was relisted for second transplant finally in oct 2002,and still waiting and waiting and waiting ...just like a little energizer bunny lol.
I have my good days and bad but all in all..its not so bad the second time knowing what to expect and also have so much knowlledge now.
The first transplant I didn't even own a computer.so I was alone,except for my family.
I am so gratefull to so many through the years and especially now helping so many in need that have just had or who are waiting,giving back is the most important thing in my life.
Other then my family it is what I do,and who I am.
If I can help or get information for anyone please feel free to email me,or send me a number and I would be glad to call.
Be well friends
Big Hugs BuuBuu Email buubuus98@aol.com
Liver Transplant and Hepatitis C Support http://forums.delphiforums.com/livertransplant/start http://forums.delphiforums.com/depressionhepc/start
Liver Transplant and Hepatitis C Support
http://forums.delphiforums.com/livertransplant/start
http://forums.delphiforums.com/depressionhepc/start
