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Useless Forum

I had high hopes when I found this forum of being able to find answers to my questions about incontinence but a quick look down the list of posted messages shows that different topics although garnering many many views have very few replies! For someone new to this horror there is really very little helpful information. Either there is no answer to "how can I stop leakage," or it is a challenge one has to put up with. Norma posted what could be a useful tip,the only one I've seen so far. Incontinence pad manufacturers are no help, they just keep selling you more and more products,dozens of confusing choices. I have spent over £50 so far and I have still not found the product I need, and a cupboard full of the ****ed things!! It is such a humiliating thing to have to broadcast, one just wants to deal with it (as with menstruation) and move on with life.

Re: Useless Forum

Hello Molly.

I am sorry you feel that way about our forum here. I would contend that our forum is only as useful as users make it. Your problem was not addressed in any post...maybe someone did not have that problem or a solution to it, and rather than putting down our forum because it did not already have a topic you were wondering about/answers you were looking for, it might have been more productive to post your particular problem or question to see if someone could help.

I hope you will stick around with us and help make this forum more useful than what you felt it was when you found it.

Respectfully,

Brian
Site Owner and one of the Moderators

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Thank you for your reply Brian. My message is what frustration sounds like :(

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Does anyone know where I can purchase single incontinence items to try instead of a whole pack of them which turn out to be useless and end up in a landfill? Incontinence Choice is not a good company to work with.

Re: Useless Forum

Hi again Molly!

I get your frustration for sure.

Are you here in the United States? If you are, our site sponsors all offer samples either for free or for a small fee. If you click on the Incontinence Resource Center banner above, it will take you back to our site and each sponsor has a banner on the page which will take you to their sites. Your IP address does not look like you are in the United States, but I know with a VPN, it can look that way.

I do get your frustration and am sorry you are having such a tough time finding the right product. Been there/done that. At this point in life, I have tried pretty well every adult brief (tape tab diaper) on the market and many from other countries. Just because a manufacturer SAYS "super absorbent", doesn't mean it is.

If you are not in the U.S. (and actually if you are even, as Northshore Care Supply carries the brand), you might check out the Elyte brand of pads. There is also the Dry Direct line of pads offered by Parentgiving. Doing some "countertop" testing, they seem to be the most absorbent pads out there and stay the driest on the top sheet.

I sure hope this helps!

Kind Regards,

Brian
Site Owner and one of the Forum Moderators

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Dear Brian, I am not in the USA, I live in the UK, as a matter of fact I have only just become aware that this is an American based forum! But nevertheless,I expected others to have the same problem. When it first happened I thought it would be an easy problem to solve, being female I am used to wearing efficient protective pads once a month, and thought it was going to get better anyway and just be a temporary problem. That does not seem to be the case and I am having to live with a seemingly impossible problem to solve and a very uncomfortable feeling of wetness. I have bought some "period pants" this week and I am hoping these will work. My kind of incontinence is leakage (as though the washer on a tap needs replacing) I do not have stress incontinence, however hard I laugh or sneeze, and I can hold my water for long periods of time, hours. I thought it may be caused by a bladder infection and I am still working on it. Thank you for the conversation and good luck with the forum. I would just like to see more focus on the solutions rather than the problems. :)

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I totally agree with you. I've not been able to find a forum to discuss particular issues and proper discussions. I've made a life choice to use an indewlling catheter for my urge incontinence. I told my 8th urologist I will never go back to using diapers or medication that didn't work. External catheters are a joke. I just want a forum to discuss living with an indwelling catheter. Incontinence sucks but it does help to talk about it. I'll keep searching for the right place. Anyone have any suggestions?

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I seem to find answers at random rather than through a forum, hard getting information. I have been all trial and error.
Pads, incontinence underwear, plastic pants, clamp. Now I am on Mirabegon 50Mg.

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Your quote "I would just like to see more focus on the solutions rather than the problems".
Well said, I have been all trial and error. Pads , Incontinence underwear, plastic pants, clamp, incontinence container in car, wearing dark trousers, key for disability toilets, nappy rash cream, small backpack with pads pants etc
You need a check list before you go out.
I am day twenty-five of Betmiga 50mg another five weeks to go, seen improvement re voiding and urgency at night, and perhaps slight improvement re leaking during the day, I leak without sensation, but it can be related to activity and how much liquid I drink (no coffee, tea, sports drinks, chocolate or cola etc)
Must be resistance talking about this subject stopping an all encompassing forum emerging.

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If you have the time, try E-Bay. I did a lot of trial and error re underwear etc. People buy in bulk then find it not suitable for them and they sell the unused stuff.
I buy washing powder in bulk, that you will always use

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Even if you take a course of Mirabegron, the timescale is a couple of months, though a few posters have said they got a result quite quickly, that is certainly not the norm.
I am starting on the "Kegel exercises" find it boring but it's got to be done.
The good thing about this medication is it helps the bladder to expand and hold more urine, and that stops you voiding as often. I void about 200ml, should be more than that. once the bladder expands, less voiding, better sleep, less stress.
I have got to stick this course of medication and see if it works. If it doesn't work, then it is a Botox injection in the bladder next, and that, if all goes well will be recurring every nine months or so
I hope this doesn't happen to you, but the incontinence wore me down lack of sleep, lethargy. Managed to shake it of and am being more pro active.

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Hello,
Could you tell me the medications that did not work for you and the length of time you were on it.
There is no quick hit I can see, I am on Mirabegron 50mg, still got about five weeks to go.

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Hi Molly!

I'm not sure if you'll see this reply, but I've struggled with incontinence my entire life. I'm a 27 year old female. I finally got to the bottom of my issue just last year after a lifetime of questions. Let me know if you want to chat, I feel like I've learned it all!