I just wanted to write and say that I wish you all the best
I have watched loved ones deteriorate (my grandmother had dimentia, and the last few years were hard to watch)
I am here to talk if you want. I check these boards quite often
I have had a suprapubic catheter since May 2013 when I was 65. Urinary tract infections and catheter blockages have been problems but these have been controlled using 4x50mg Nitrofurantoin per day for 7 days to cure them then 1x50mg per day to prevent them returning. It is not a perfect solution but is probably the best alternative for me.